Posted opportunity — confirm at source
Long-term health outcomes of people living with spina bifida
Centers for Disease Control - NCBDDD · CDC-RFA-DD-26-0222
$100,000 – $300,000
2026-10-26-00-00-00
Confirm exact timezone in the announcement.Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Special district governments, Native American tribal governments (Federally recognized), County governments, Small businesses, City or township governments, Private institutions of higher education, For profit organizations other than small businesses, Public and State controlled institutions of higher education, State governments, Independent school districts
Geographic eligibility and all attachment-specific conditions require review of the original announcement.
Matching funds & resources
Source matching-funds field: Not Required.
Matching funds and leveraged resources are different requirements. Read the description and reviewed rules below before determining resource commitments.
About this opportunity
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Funding geography: Not specified — review source. A funder’s address does not establish eligibility.
Review original source ↗Funding instrument: Cooperative Agreement. Issuing jurisdiction: Federal. This is not a geographic eligibility determination.
Source fields and evidence
id: 361002
Source ↗ · id
opportunityNumber: CDC-RFA-DD-26-0222
Source ↗ · opportunityNumber
opportunityTitle: Long-term health outcomes of people living with spina bifida
Source ↗ · opportunityTitle
revision: 4
Source ↗ · revision
agencyDetails: {"code":"NCBDDD","seed":"HHS-CDC-NCBDDD","agencyName":"Centers for Disease Control - NCBDDD","agencyCode":"HHS-CDC-NCBDDD","topAgencyCode":"HHS"}
Source ↗ · agencyDetails
owningAgencyCode: HHS-CDC-NCBDDD
Source ↗ · owningAgencyCode
cfdas: [{"id":431594,"opportunityId":361002,"cfdaNumber":"93.073","programTitle":"Birth Defects and Developmental Disabilities - Prevention and Surveillance"}]
Source ↗ · cfdas
applicantTypes: [{"id":"13","description":"Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education"},{"id":"12","description":"Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education"},{"id":"04","description":"Special district governments"},{"id":"07","description":"Native American tribal governments (Federally recognized)"},{"id":"01","description":"County governments"},{"id":"23","description":"Small businesses"},{"id":"02","description":"City or township governments"},{"id":"20","description":"Private institutions of higher education"},{"id":"22","description":"For profit organizations other than small businesses"},{"id":"06","description":"Public and State controlled institutions of higher education"},{"id":"00","description":"State governments"},{"id":"05","description":"Independent school districts"}]
Source ↗ · applicantTypes
fundingInstruments: [{"id":"CA","description":"Cooperative Agreement"}]
Source ↗ · fundingInstruments
fundingActivityCategories: [{"id":"HL","description":"Health"}]
Source ↗ · fundingActivityCategories
awardFloor: 100000
Source ↗ · awardFloor
awardCeiling: 300000
Source ↗ · awardCeiling
responseDate: Oct 26, 2026 12:00:00 AM EDT
Source ↗ · responseDate
responseDateStr: 2026-10-26-00-00-00
Source ↗ · responseDateStr
responseDateDesc: Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.
Source ↗ · responseDateDesc
costSharing: false
Source ↗ · costSharing
lastUpdatedDate: Aug 26, 2026 09:56:47 AM EDT
Source ↗ · lastUpdatedDate
status: posted
Source ↗ · oppHits[id=361002].oppStatus
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